Friday, July 11, 2008
First Run4NF Blog
I have never written a blog entry before. But as I run everyday I have so much I want to share with the NF community. So today being the first day that I got it together and opened a blog site for Run4NF.org. Where to start? I guess I will tell you about me. I did my first Run4NF a few years ago. I decided that I was going to make a difference. So I picked a race, put on some shoes, did some reading on how to train for a big run and just did it. I had no goal except to make as much money for NF as possible by setting a difficult challenge for myself. And everytime I was on a practice run I thought about my daughter Grace. She is now 5. I do not only run for her anymore. I run for the hundreds of amazing people I have met or emailed. I hope Grace has options in her future for any complications she might face, but when I run I think of all those who are facing complications right now I am inspired to keep doing what I am doing. If not us, then who? That is what I try to explain to people. It is our responsibility as able people to do something. So I now arrange to meet in places with others and hope they join in doing something to help themselves and their loved ones. I have faith in each of you who has read this far that you know you could do a bit more than you are doing. We all can. It is our nature as humans to do as little as possible~sometimes. But this can not wait. No one but us will make the efforts to make it better for those affected by NF. I want you to try one Run4NF event. My life is fuller for trying. Every little bit counts. And a Walk4NF or a Run4NF, both are empowering experiences. Both are actions. Through our actions the future for NF is altered. Closer to a cure, hope, something better than where we are now. More to come...debbi@run4nf.org. www.run4nf.org
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4 comments:
Great inspiring post! I have nf2 and am running for CTF in Long Beach in Oct. I'll be following your blog so good luck!! --- Olivia
A very inspiring blog, I myself along with my 2 Boy's also have NF1 I know all to well what goes on in the family. My legs hurt to much to run but in my heart i run along with you, i look forward to reading more of your blogs.
As a parent of an adult son with NF, I thank all those that work towards finding treatments and a cure for the different forms of NF. I do my share by riding my bicycle and raising funds.
Deb,
This is wonderful and a fabuous first post chronicling your Run4NF experience. Welcome to the world of bloggers! I am so glad that you have chosen this avenue to share your experience! People need to read and learn your story.
I have discovered that telling people about what you are doing and leading by example is a very effective way to get the message to people and encourage them towards action. It is a crucial part of accomplishing your mission.
I look forward to following along with your journey. I will add the link to your blog onto my blog under the Run4NF section.
Happy Running!
Rebecca :o)
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